And...We're Done!

We went to the orthotist today for Carter's next round of head measurements.  We have been on this journey since February 2nd.  When we first went in, Carter had a 17 mm difference between two measurements that needed to be corrected.  Here's a look at his head before we had the helmet:

Today Carter is only measuring a 9 mm difference which means his head has rounded out by 8 mm!!!  We asked about how much longer we needed to continue.  She said that at this point it is really up to us.  His head will not get any worse.  As he grows it may even continue to naturally round out through his 2nd and 3rd years.  His ears are closer to symmetrical now, so concerns about glasses fitting in the future are no longer applicable.  Also, he shouldn't have any trouble getting hats to fit either.  Our major concern about stopping too soon was whether or not his forehead would start bulging again.  When we started this process, Carter was beginning to show signs of a forehead deformity because that was the only direction his brain could find to grow.  That is no longer an issue, and since his head will stay as it is or get better then we do not have to worry about that either.  In the end, she left it up to us.  We left the clinic and talked a little bit.  We are ready to be done!!  As it gets warmer he's getting sweat rashes where the helmet touches, and when that happens we have to take it off until it gets better.  His growth spurts are likely to slow down quite a bit since he will be one next week, so that will make his progress slower.  Taking all of this into consideration we decided we were ready to call it quits.  We were ready to see our sweet baby's head without the helmet and SO ready to cuddle without all that plastic in the way!  Here's some similar shots of his "new," rounder head:

We are SO thankful for our orthotist that took us through this process.  She was fabulous, and Carter loved her!  It was nice to have extra protection on his head as he learned to crawl and pull up.  There may be extra bumps and tears now, but he's also gained a lot more strength and balance during this time so that will help a lot!  And, no matter how his head looked/looks he will always be my perfect little gift from God!

Here's a silly shot for the fun of it!

Orthotics Lessons

We went to see the Orthotist today for Carter's Plagiocephaly. I just have to say that I am a nerd, and I found the entire thing utterly fascinating!! :) I'm also extremely thankful for the clinic we chose to go to. The people are wonderful and the CPO (Certified Prosthetist Orthotist) was amazing. She was fun, very personable, very knowledgeable, and explained herself clearly. She was wonderful in her interactions with Carter, and that's always important to a mama!

She explained that when an area of the skull is malformed (the flat side of the back of his head) then the brain has to find another area to grow. This is what is causing the beginnings of a bulge on his forehead-his brain doesn't have any room in the back so it's growing where it has room. The wonderful thing about the way God created babies? His brain does have room to grow!!!! Even if it's making his skull misshapen, there is absolutely nothing wrong with his brain!!! (We already knew this, but I was just struck by God's awesomeness of creation as she explained how the skull and brain work at this point in development). The helmet is considered a passive intervention. It is not actually pushing on his head. It will basically only allow his skull to grow in certain directions. So, the area that is flat right now won't actually be touching the inside of the helmet. The helmet will put pressure in other areas so that as his brain grows the flatter areas will have to grow. This is the reason why this intervention only works before 18 months of age--their skull plates have to still be unfused (if that's a word) so that everything can easily move without creating any issues for brain development. Carter is still in a perfect timeframe for intervention.

She took several measurements of Carter's head. Two of the measurements she said that if he had a perfectly round head there would be a 0 mm difference. Carter has a 17 mm difference between these two measurements. Then she told us about a ratio on a different set of measurements. The ratio should be 80%. Carter's was at 93%. (I know I'm not being very technical. I'd have to actually show you on his head where these measurements are, but I think you still get an idea). She classified Carter's Plagiocephaly as severe. She said that if we did nothing that over the next 10 months some change would naturally occur. The flat part of his head would round out some, but that it will not naturally completely correct itself because of the level of severity. She did affirm that it is still a decision up to us. It won't hurt anything to not put a helmet on him. His brain will still grow and develop just fine continuing to make room for itself as it needs to. She commented that if we did nothing the Plagiocephaly could impact how a hat fits in the future as well as glasses if he should need those. She said that women can more easily disguise this issue because of long hair, but that men usually have shorter hair and can go bald so his head shape can potentially be easily noticeable throughout his life. Anyway, all that to say that we in no way have to correct the problem, but it could still impact things in his future. All of this confirmed our decision to go forward with a helmet.

She took some really cool 3D images of Carter's head to send off to the company that makes the helmets. We go in a week to have it fitted and bring it home. We will spend a week breaking it in and working him up to 23 hours a day. She compared this to wearing a new pair of shoes. If he immediately went to 23 hours a day, he could get pressure sores on his head. They will send us with specific instructions for this next week.

We felt very good about today's appointment. We loved her, and feel very comfortable and confident in working with her and her clinic for the next 3-4 months. We are thankful for the Lord's guidance in this process and thankful for an easy going baby that thought today's appointment was just another fun thing in his life. :) We are praying for a smooth transition into the helmet and that he won't even know it's there!

I'll update again next week with how his first fitting went and post pictures as well! I'm sure he will still be the most adorable little boy that exists!

Plagiocephaly...

...is a big word for flat head. Carter saw a neurosurgeon today for a consultation regarding the flattened right side of his head. Many people have told us they have not noticed his head is misshapen. It is very hard to see from the front. From the back and right side you can tell that he has a significant portion of his head that is flatter than the rest. When looking from the top down you can see that his ears are significantly off center. If you look very closely you can notice that the right side of his forehead slightly protrudes farther forward from the left.

The doctor did let us know it's simply a cosmetic concern, not a medical concern. He did say that the "deformity" was significant enough for him to recommend intervening. He said we could wait and it might correct itself over time, but eventually Carter will reach a point when it will be un-fixable. Right now the plates on his head are still far enough apart to allow a helmet to quickly, easily, and painlessly correct the problem. Once the plates fuse it will not be repairable. Taylor and I decided that because it is a noticeable issue we felt it is important to go ahead and intervene even though it is simply a cosmetic concern.

The neurosurgeon wrote us a referral for an orthotics clinic that will do the measurements, ordering, and fitting of his helmet. We go on Thursday at 1:45 for his initial cranial measurements. This same clinic will do all of his fittings and adjustments. We will go back to the neurosurgeon in 3 months for a follow up. He predicted that it should be corrected by then. It is a little difficult to exactly pinpoint the timeline because a lot of it is based on Carter's growth.

So, that is our update on our sweet little boy and his head. I will continue to update as this journey continues! Now, it's time for me to get online and order him some precious decals for his new helmet!